Category Archives: Uncategorized

Born and raised in San Diego, CA I was diagnosed with Lupus SLE at the age of 23 in 2007. An uncle of mine also has lupus and is paralyzed due to a stroke and kidney failure causing him to be on dialysis. I would assist with his at home care so I had firsthandContinue reading “Who am I?”

So a few years back I was hospitalized and doctors told me my body was shutting down due to a lupus flare up they couldn’t control. When my body began recovering I was still getting shortness of breath walking short distances, even just up a short flight of 10 steps, so I was referred toContinue reading “Sea Moss anyone ?”

As I sit here wide awake I see it’s 2:52am and I’ve been fighting falling asleep since about midnight. Nothing like feet numbness causing pain that keeps you up all night. I finally take a Gabapentin to help the nerve pain go away long enough for me to fall asleep but this whole week it’sContinue reading “Restless nights.”

It was slow at work so I just started doodling and this definitely has been my mood. I’ve actually just been a moody mess for a couple weeks now. I can’t wrap my mind around things we are all just trying to survive right now. The uncertainty across the WORLD has me so confused. I’mContinue reading “big mood.”

I’m lying. No I don’t. I’m stressed. I’m worried about going out every day to work with a suppressed immune system when every where I look I’m told I should be locked away in a bubble to stay safe. I’m concerned about how are my three school age kids going to do distant learning withContinue reading “It’s the end of the world as we know it… and I feel fine.”

Learn. Connect. Advocate. Each March, lupus advocates join together at the Summit to share their stories with Congress in hope to support policies to increase funding for lupus research. Every year I have seen posts about the National Lupus Summit and was bummed I couldn’t go, either not healthy enough or couldn’t afford it. ThisContinue reading “2020 National Lupus Advocacy Summit”

Living with Lupus can have a huge effect on someone’s mental and emotional well-being. Being diagnosed with a chronic illness brings emotions like grief, fear, anxiety and depression. The uncertainty that comes with being told you now have an illness that has no cure is frightening. I was first diagnosed at 23 and because myContinue reading “Lupus and Mental Health”

Never fails. Every morning I wake up stiff, and it takes me a good extra hour to really get up and moving around. By the time it’s bed time I’m fully functional and start doing things I couldn’t complete in the early morning hours. Now that I work again it’s hard to get more thingsContinue reading “Mornings be like..”

Recently I keep having flare ups and I can’t help but think it’s got to do with my poor eating habits. I think I eat better than I used to.. got rid of soda, less sugar in general, basically less of everything. But I still do salt, still have sweets, still indulge in my chipsContinue reading “Let’s talk diet.”

Warrior Remind yourself of what you’ve been able to overcome. All the times you felt you weren’t going to make it through, you proved yourself wrong. You’re more powerful than you think. I felt a strong pull in my heart to share my experience with Lupus publicly versus in a private journal in an effortContinue reading “My First Blog Post”